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How could they get my diagnosis so wrong.
Prostate Cancer | Last Active: Sep 20, 2023 | Replies (26)Comment receiving replies
pianoman, too bad. I had my biopsies done at Jacksonville Mayo and my first consultation at Mayo oncology/radiology. I had not decided on treatments.
During my consultation with oncologist/radiologist at Mayo Clinic (after my results from biopsie showed cancer, gleason score, stage, agressiveness) he asked if I wanted to do a Decipher test as would be more accurate to determine agressiveness of the cancer. This Decipher test gave me the information I needed to make decisions on treatments.
I am not sure where you are going but does not sound like someplace I would like. But having said that it really depends on where you live and ability to travel to centers that can offer you more. I know if I lived closer to Rochester or Phoenix I would gone there for their proton radiation treatments as Jacksonville does not have it yet.
But I am in Florida and just to far along with having to stay there for treatments. My wife is a Diabetic 1 just diagnozed in May of last year and has yet to get it under complete control so staying close to home and Mayo Jacksonville (where she is treated) was another factor. She gets excellent care there and great providers.
Good luck and hope things work out for you!!
Replies to "pianoman, too bad. I had my biopsies done at Jacksonville Mayo and my first consultation at..."
I wish I had the Decipher test done in the beginning, it was not offered. So I had the Gleason test (8) Come to find out, at best it is 80% accurate(NCI). Many recent studies have it less than 50% accurate causing more prostatectomies than necessary. I requested before my surgery that a decipher test be done on the tumor. Turns out , after ADT they won't do decipher test. and there wasn't enough tumor left after surgery to test. Should I be suspicious ?
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At the time they did not offer me a decipher test. After RALP I requested a decipher test, was told that once you have ADT they can't do it. So I requested another Gleason test, was told the tumor was so small that there was nothing left to test. I am grateful though. I am cancer free and was told that there was no Metastasis .