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@tmbdefazio

Thank you so much! You are always so spot on. It is so interesting that your CA is high also. Mine has always run high (up to 10.5-9) but went down to high 9s while taking Alendronate. Like you the PTH is fine. Fortunately I have not been on any cancer drugs.
I wanted to do the Tymlos first for the same reason you did as I heard you could buy time and sequence to Evenity later? I hadn't heard that changed.
I have a Dr Appt and I am going back to request Tymlos again now that we ruled out parathyroid. It seems it still buys time to me 🙂 He like most docs here go straight to Evenity now.
I really don't want to do the Prolia route unless it's down the road and I have to. I was told because I already did 5 years of the Alendronate that Prolia would be my only option and I question that too. Tymlos will give me a couple years to figure that out hopefully.
It's all such a puzzle piece and it is such a blessing we have people like you that are willing to help and share all that you learned.
I hope I can do the same at some point.
Thank you again and have a wonderful day.
Barb

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Replies to "Thank you so much! You are always so spot on. It is so interesting that your..."

@tmbdefazio I have seen quite a few people on this board doing Evenity after Forteo or Tymlos, and I attended a masterclass with Dr. Lani Simpson whose patient did that sequence.

Boston/Harvard affiliated docs tend to be conservative and wait for studies. I got two extra opinions. It is a little frustrating. Keith McCormick is on board with the Reclast (and I am doing a 20% dose with IV hydration and slow infusion!).

The patient of Lani Simpson continued to have gains on Evenity after Tymlos.

I have been told that I can "lock in" gains with Reclast and save Evenity for the future. I guess that's one way to look at it.

Sounds like your doc might do Evenity after Tymlos! I don't regret doing Tymlos at all 🙂