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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
I WAS seeing an endocrinologist for several years until a couple years ago when she thought my problem was stable enough for my pcp to order yearly thyroid tests. Back in the 1980s I had what they referred to then as a 'cold' nodule and had surgery to remove it and half of my thyroid on that side. It was benign. I have never had abnormal thyroid tests (knocking on wood). But down the road I developed what she referred to as benign nodular thyroid if I remember correctly. She did her own sonograms in her office. I had multiple thyroid sonograms. She was also ordering my bone density and reclast infusions. So if necessary, I can go back there.
She is an excellent Dr.
suzanne
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I won't pretend to know anything about thyroid function. However, the thyroid, the adrenals, cortisol levels combined with autoimmune disorders like PMR are potentially an endocrine problem just as much as a rheumatology problem. Your medical history sounds complicated.
Seeing your endocrinologist again might be a good idea. Maybe a followup visit or send her a note to let her know that you have been on prednisone. It sounds like you are having difficulty tapering off prednisone. Depending on how long you have been on prednisone, you will probably need an endocrinologist eventually.
When people take prednisone for a long time and have difficulty tapering off prednisone, the chances of an endocrine problem are more likely. That is why I see an endocrinologist.
At the very least, it would be interesting to see what your endocrinologist says.