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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)
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@timely

Hi:

I am getting mammogram and ultrasound on both breasts and then 6 months later mammogram and ultrasound on just the lumpectomy breast. Then both at next year point and most likely lumpectomy breast 6 months later of mammogram and ultrasound.

I switched to a new site. Another site affiliated with one of our hospitals offered just mammogram once a year and I was told that it was their guidelines. I did not think that was good.
I realize that the MRI shows more for ILC.

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Replies to "Hi: I am getting mammogram and ultrasound on both breasts and then 6 months later mammogram..."
Sue Ellen Murrey | @semurrey | Sep 20, 2023

Thanks for sharing! I will report back after my mammo on 10/10 at Dana Farber - that's technically one year mark since last mammo which did catch my lobular but had been called back the year before and nothing was noticed. The MRI I had to help with surgical decisions showed a larger 1.8cm of ILC. I did not get great margins all around so did a boost of radiation for the final 3 radiation treatments. I am hoping I can have an MRI in April 2024 but not sure my insurance will cover which seems to be the problem with many I hear. Early detection is all we have so why not offer us gals with lobular and very dense breasts a better shot with MRI?? If anyone has had luck getting MRI on alternation pattern with mammo please let us know! thanks so much xoxoxo

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