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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)
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@dadcue

Thank-you for your reply.

My appointments over the years at a large university medical center were just like your appointment. I almost always had a fellow and a professor in rheumatology as my staff doctor and sometimes 2 staff rheumatolgists. They all seemed very interested in my case and I liked all of the attention. The educational discussions they had with the fellow were educational to me as well.

The cortisol thing is more in the purview of an endocrinologist. You might get to see one of those doctors when you get to a lower dose of prednisone. I think there should be joint specialty consisting of training in endocrinology and rheumatology.

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Replies to "Thank-you for your reply. My appointments over the years at a large university medical center were..."
pmrsuzie | @pmrsuzie | Sep 17, 2023

I WAS seeing an endocrinologist for several years until a couple years ago when she thought my problem was stable enough for my pcp to order yearly thyroid tests. Back in the 1980s I had what they referred to then as a 'cold' nodule and had surgery to remove it and half of my thyroid on that side. It was benign. I have never had abnormal thyroid tests (knocking on wood). But down the road I developed what she referred to as benign nodular thyroid if I remember correctly. She did her own sonograms in her office. I had multiple thyroid sonograms. She was also ordering my bone density and reclast infusions. So if necessary, I can go back there.
She is an excellent Dr.
suzanne

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