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Began folfirinox treatment - have a few questions

Pancreatic Cancer | Last Active: Oct 27, 2023 | Replies (54)

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@lisn

I'm so happy that your husband's final treatment is Tuesday!

Today is day 6, and he's still not feeling like himself. He's got some intestinal cramps, but bowel movements are normal. He said if he still has them tomorrow he's going to reach out to the team.

Regarding the notebook, thanks for mentioning that. I had started jotting down notes from what I was observing each day. I'm going to keep going with that and see what's helpful.

The saline has been mentioned several times, and is on my list for discussion next week.

Thank you.

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Replies to "I'm so happy that your husband's final treatment is Tuesday! Today is day 6, and he's..."

You’re so welcome. My husband has found that days 4,5, and 6 are very hard usually. Maybe because the steroids are finished after day 3. He also still gets cramping and has been taking dicyclomine prescribed by his Oncologist as needed. He feels it is been very helpful.

With regard to keeping notes: Because I'm almost surgically attached to my laptop, I use it to keep track of
(1) when I've taken which meds, and
(2) which side effects I'm having, and how much I've eaten / drunk.

I do #1 via folders (click on image below) because they take up no space on the hard drive, can be created instantly, can be searched, and are so small that I can look at several days' data at once; I do #2 in a txt file that I keep open most of the time so I can easily enter the info.