← Return to Began folfirinox treatment - have a few questions

Discussion

Began folfirinox treatment - have a few questions

Pancreatic Cancer | Last Active: Oct 27, 2023 | Replies (54)

Comment receiving replies
@kjc12

I hope today is a better one for your husband. Mine started his treatment in April, 2023. He is having his final treatment this Tuesday and it has been an up and down journey to say the least. You will find each treatment a little different than the previous. Does your husband take an oral steroid at home on days 2 and 3? This might help in as the IV ones wear off. He has recently been getting IV of saline day of treatment and also on the disconnect days and this has helped a lot. They say each treatment is cumulative and he does feel they do get harder. He had to take a month off to try and recover from all the associated symptoms. Keep in touch with your Doctor’s team with all your concerns.
It helped my husband greatly to keep a notebook and at the end of the day log in whatever symptoms (nausea, diarrhea, energy level, etc) he had so that he could figure out what days would be worse and what helped for the next treatment.
Take things one day at a time. He is lucky to have you through this journey. Reach out to me if I can be of any help in the caregiver role. God bless you all🙏🙏

Jump to this post


Replies to "I hope today is a better one for your husband. Mine started his treatment in April,..."

I'm so happy that your husband's final treatment is Tuesday!

Today is day 6, and he's still not feeling like himself. He's got some intestinal cramps, but bowel movements are normal. He said if he still has them tomorrow he's going to reach out to the team.

Regarding the notebook, thanks for mentioning that. I had started jotting down notes from what I was observing each day. I'm going to keep going with that and see what's helpful.

The saline has been mentioned several times, and is on my list for discussion next week.

Thank you.