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Does GCA ever present with mild symptoms ?

Polymyalgia Rheumatica (PMR) | Last Active: Oct 4, 2023 | Replies (13)
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@rtuna

I certainly would not ignore your symptoms. It may save your sight or life!

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Replies to "I certainly would not ignore your symptoms. It may save your sight or life!"
macferse | @macferse | Sep 17, 2023

Thanks, rtuna !

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jennywren | @jennywren | Sep 20, 2023

I was originally diagnosed with PMR in Dec 2019. After taking my first 15mg of Prednisone all of my pain went away. However, I think it was due to being told to taper too quickly GCA turned up three months later. Fortunately, no visual issues. I had really painful jaw when I opened my mouth wide, a tender head, headaches and tender temples. I was told to increase the steroids to 40mg which I am still trying to taper. I manage to reduce down to 5mg then up I go again as PMR starts up again. Recently I managed to reduce it to 4mg and GCA turned up yet again. Good no visual issues so I increased up to 10mg for a few days and tapered 1mg every 5 days....currently on 5mg. I've been offered Leflunomide to help me taper off Pred but hesitant to take it with all the written potential side effects. We're all aware that GCA can cause sight loss quite quickly if not on a very high dose of Pred. But why go up high if no visual problems?

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