I've been trying to get off Lyrica for years because I didn't feel that it wasn't doing much in terms of helping my chronic pain (neuropathy, lower back pain). At one point I had edged down to 25 mg/d, but the pain was agonizing, so I went back up to 100 mg/d, which barely took the edge off. I'm back down now to 18 mg/d and having loads of pain, much more than I had years ago when I first got on Lyrica. A complicating factor is that if I go off cold turkey, I know from experience that I'll have seizures. Regardless, I really want to get off it because, not only does it not help much with pain, but it also massively increases my weight, brain fog and exhaustion. I keep trying to find another way to control the pain. Opioids are out - in the long term, they make the pain worse. I'm trying out low-dose naltrexone, but it seems I may be allergic to it - jury is out on that. Most maddening of all is that, despite barking up many trees, we still don't know what the underlying disease is that is causing my nerve pain. I've been diagnosed with mitochondrial dysfunction, adrenal insufficiency (Addison's disease) and am heterozygous for SDHB and FBXL4, but none of these is sufficient evidence for my doctors to conclude that we have found the cause of my nerve damage. Without a cause, trying to find an effective treatment is very difficult.
I'd love to hear how you progress in your quest to get off Lyrica.