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Autoimmune mystery

Autoimmune Diseases | Last Active: Sep 16, 2023 | Replies (90)

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@becsbuddy

@slkanowitz I see that you just recently joined MayoConnect and we’re certainly glad to have you! Your explanation of autoimmune disorders was very helpful! The delay between onset of symptoms and final diagnosis can be very difficult to understand. I know that some people wait years to get a proper diagnosis and that’s a real problem.
Do you have an AD? You certainly have an understanding of it all! Thank you!

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Replies to "@slkanowitz I see that you just recently joined MayoConnect and we’re certainly glad to have you!..."

Actually I have 4 AI diseases, systemic lupus, which took 10 years to diagnose, RA, relapsing polychondritis, and just this month have been diagnosed with CIDP (chronic inflammatory demyelinating polyneuropathy.) It is a rare one that causes peripheral neuropathy and muscle weakness. I have had symptoms of that for about 12 years but had an acute exacerbation of symptoms (Guillian Barre Syndrome) this July following a Coviid infection. It has been a very rough summer! Thanks for your comments and I will try to stay involved with MayoConnect.