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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)
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@pedie

Will check out the web site. My PN was caused by chemo and radiation. Just recently have been treated for an orphan autoimmune eye disease, so perhaps that aggravated the PN. I have a little pain at night, but mostly very poor balance (my brain doesn't know where my feet are) and the numbness. What supplements do you take? And what is small fiber PN?

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Replies to "Will check out the web site. My PN was caused by chemo and radiation. Just recently..."
John, Volunteer Mentor | @johnbishop | Mar 11, 2020

@pedie you can find the list of the supplements I take in the first link to my story for what helps me. I'm glad you are doing your own research and learning as much as you can about your condition. Here are a couple of sites to learn more about small fiber PN.

Small Fiber Neuropathy: Disease Classification Beyond Pain and Burning
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5912271/

Neuropathy Commons website -- https://neuropathycommons.org/

I also have balance issues when I first stand up or have to get up at night to use the bathroom. I use a walker when I get up at night but never need it during the daytime. The Foundation for Peripheral Neuropathy has some good exercises to help with balance including photos here: https://www.foundationforpn.org/living-well/lifestyle/exercise-and-physical-therapy/#balance

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