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@bevr

So confusing and scary! I only have my own experience to share. Hopefully someone else has more info. I would say to keep doing research, and get another opinion depending on where you are and what you find.

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Replies to "So confusing and scary! I only have my own experience to share. Hopefully someone else has..."

Very! My heads all over, it’s been very fast paced with all the scans etc over the past few weeks after having to wait from December last year till June this year to be initially seen. I guess I will be getting a second opinion soon as the surgeon I am seeing is at another hospital and has been asked to review my case.

Hope you are all ok now? Thanks again for sharing your experience