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2 weeks after reclast infusion, jaw hurts and feel strange. Scared
Long story short have been unwell for 7/yrs. Diagnosed (with integrated wellness dr who passed was during Covid) with Hashimoto’s thyroiditis, fibromyalgia, IBS-C and cardiomyopathy then Rheumatologist added fibromyalgia. Couldn’t move, fatigued and life was on hold
Found amazing new Dr who diagnosed gluten allergy causing gut issues and started me on jardiance to help with severe bloat leg pain edema and blood flow not getting to to feet
Big issue osteoporosis that bones are dust had reclast two weeks ago and I as frightened and would love to hear about anyone with jaw pain, debilitating headaches and now a skin rash little red raised rough pimple like scabs on arms legs from waist to toes and thighs. Came on just tonight.
Afraid I am losing jaw bone as side effect can be because my teeth and jaw hurt. Feels like my mouth isn’t limed up the same way Any one had anything like this??
Thank you in advance
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If your DEXA scores are bad, maybe you should talk with your doctor about doing a bone builder like Tymlos, Forteo or Evenity. You can tell insurance that you "failed" Reclast with bad side effects. More Reclast will probably interfere with the effectiveness of bone builders, according to my docs.
In the meantime, maybe see your dentist to see what is going on. Pain does not always mean damage in my experience. Hope it eases up!
ps I chose Tymlos because the dose is adjustable on the injection pen, so I could ramp the dose up as my body got used to it.
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4 ReactionsSo disheartening when the "helping, hurts". Finding the right treatment/ medication is a journey all of its own.
I would inform your doctor of these symptoms.
Best wishes for a positive outcome.
Thank you for taking the time to respond.
I am hoping that it is just some all over residual side effects I am having like headaches and the nausea has finally subsided.
If not I will discuss further with Dr.
Stay well and safe
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1 ReactionI am doing very well on Reclast after 2 months. But, I also have an active exercise program, stress management training, and weight management. I am having a series of old crowns removed for new ones. My dentist knows that I am on Reclast. I am a prior fosamax user and did not like the weekly pill. That is all I know as a 74 yrs. old Caucasian.