← Return to Autoimmune Cerebellar Ataxia vs. Autoimmune Encephalitis

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@becsbuddy

@vball91 good evening and welcome to Mayo Clinic Connect. Members try their best to answer questions and give support and tips.
You’ve asked about cerebellar ataxia vrs, autoimmune encephalitis. Ataxia means something is causing your gait to be off. And encephalitis is an inflammation of the brain. I had cerebellar ataxia which was finally diagnosed with Clippers, chronic lymphocytic inflammation with pontine perivascular involvement responsive to steroids. Long name!
The discussion group https://connect.mayoclinic.org/discussion/clipperslooking-to-connect-with-others/ Is only moderately active because we have so few members. Be sure to check it out!
Was the neurologist at your local hospital or a comprehensive medical center? You might go to a medical center or university teaching hospital. A second opinion will give you a diagnosis and treatment options
https://connect.mayoclinic.org/discussion/ataxia-1/. There are also other discussions on ataxia the may be helpful

May I ask how you found Mayo Clinic Connect?

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Replies to "@vball91 good evening and welcome to Mayo Clinic Connect. Members try their best to answer questions..."

Thank you. I will look into CLIPPERS. I found Mayo Clinic Connect because I went to Mayo Clinic in Rochester, MN for a second opinion. The doctor there said the same thing as my doctor at home (Massachusetts General
Hospital in Boston, MA). Both said it’s probably autoimmune cerebellar ataxia. Two neurologists at MGH have said it’s a form of autoimmune encephalitis, and two said it’s not. The doctor at Mayo said it’s not AE.