Finally another woman who has gone through what I have….
I had symptoms similar to a bladder infection-UTI-three years ago. Went through the testing, but nothing was found.
Last year I had the same symptoms-burning. frequency, blood in my urine; this time I was diagnosed with high grade invasive (through the muscle wall) bladder cancer.
I was seeing a local urologist, but couldn’t get in to one who could do the procedure I needed done which was similar to yours. So a year ago September, I went to the Mayo clinic.
I had my ovaries, tubes, all pelvic nodes and bladder removed. They also took 18 inches of ileum to fashion a new bladder, a neo bladder.
I had just about every complication:
Massive infection,
Intestinal blockage,
Blockage from the kidney through the ureter, and now
Lymphedema in one leg.
The new bladder functions more like a funnel than a Reservoir. And I live with terrible incontinence. -12 pads a day.
I go back every three months for a check up.
No return of the cancer has been found so far.
But I was wondering if any other woman has the same issues as I. Someone who can share how they get through the days…