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New PMR patient, wondering if mornings will become pain free someday
Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 11:10am | Replies (120)Comment receiving replies
So I have been splitting my 20mg prednisone to 15 at breakfast and 5 at dinner. The good news:
* daytime pain level is 0-1 still (mornings can be a 5), i.e unaffected
* I seem to be less jittery during the day
* I sleep ok (see below) and have a little less pain upon waking (3 is the average)
The bad news:
* I've been waking up at 5am and having a little problem falling back to sleep for my typical 6:30 awakening. Wondering if taking pill no. 4 earlier or later than dinner would affect this.
So, net/net is that I am quite a lot of the time pain-free, and will keep on the 3/1 split until I see the refered rheumatologist next Tuesday (first visit with him).
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That's mostly good news. When I took the second smaller dose at 4.30pm I slept okay and had fairly painfree mornings. Since moving the dose later to 7pm with dinner, (more convenient and more easily remembered), I'm waking hours earlier and had thought of moving that dose back an hour or two, or increasing the 1mg of night time Melatonin back up to 2mg.
Your experience tells me it is more likely the prednisone is causing my sleep changes rather than the Melatonin reduction. Thank you for sharing your experience.