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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@rwinney

Dear Chris (and fellow Connect supporters) ~

I'd like to elaborate on the importance and timing of your post (Chris). Also, I'd like to share this info so it may help someone else.

The evening you messaged me back was a very difficult and painful one for me which is why you moved me to tears. Not only was your reply kind, sincere and supportive, but it also showed how much you pay attention to each persons needs and conditions in this forum.

I had made poor choices that day. One, I consumed too much sugar and two, I took my THC dose 5 hours apart instead of my usual 6 hours, out of desperation.

I had not been treating myself well by consuming muffins each day leading up, a candy bar the day prior, then on that particular day...a chocolate shake. Call me bone headed but, the last time I got spiteful about my condition and ate a half bag of marshmallows, I paid the price the next morning with nerves firing up beyond the normal misery. So yes, I should have known better.

THC side effects hit me 1 1/2 - 2 hours after consumption. Boy did they hit me with fury that night. I could not move, lift my head or function from severe dizziness, nausea,, dry eyes, dry mouth, disorientation, brain fogg. It was very scary.

During this time, I also was in the mother of all pain flares. More extreme than usual. My guess... sugar. Debilitating pain, spasm, burning fire, cramping, numbness. I felt contorted and was in such a poor state from the THC side effects that I lay there suffering...mentally talking myself through it and focusing on slow, deep breathing. I contemplated going to urgent care (despite my embarrassment) but, decided to persevere and make myself ride it out.

After a total of 4 hours, between pain attacks settling with my next dose of hydrocodone and the THC wearing away,...I came to.
That's when I eventually looked at my phone and saw your reply Chris.

Man oh man did it move me to tears. They say timing is everything and your timing was impeccable! You presented a reflection of my strength that I felt I had just voided from my mistakes. It overwhelmed me in the moment.

My point here is... this physical and mental journey of pain continues to make me (us) learn, grow and test the boundaries of our inner strength. Even though I made wrong choices that day that did not benefit me...I learned from them and I hope others will too. We are all human and all we want is to live comfortably to the best of our abilities with love, support, encouragement and kindness.

Thank you Chris, Jim, Lori Renee, John and many, many others in Connect, from the bottom of my heart, for riding shotgun with me down the incredibly bumpy road. May you all be well this evening and not drinking shakes! (wink, wink)

~Rachel

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Replies to "Dear Chris (and fellow Connect supporters) ~ I'd like to elaborate on the importance and timing..."

You, Rachel, and others in the group here, are SO INSPIRING. Without getting too metaphysical I just want to say that those of you living your lives in such a state of ongoing crisis (my wife is dealing with PN not me) I truly believe it is for a reason. God or the universe or however you want to think of who/what is in charge here has some plan. I truly believe this is not for no reason. I am so sorry for the suffering which I see my wife go through as well as what I read in the various forums about living with pain, but all I can say is it is good to see you not lose hope. Although your world may become very very focused on the pain to the exclusion of much that others enjoy and take for granted, I have seen firsthand the strength that comes out of it. So the fact that through all of this you are not giving up Rachel is very inspiring. Best, Hank

I am going to read your post to her when she wakes up this morning (she hates computers -hence why I am on this blog and not she; I do all online research on her behalf).

Rachel, my wife said this regarding your post of yesterday:
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Rachel, Hank just read to me your post. I understand and sympathize with your dilemma. I believe chronic pain offers an opportunity for "any" weakness in your body to flare and thrive. Even though I know my suffering will increase when I have a drink or eat something containing sugar -- sometimes you just need a "vacation", a diversion from pain. So don't be too hard on yourself. Everyone needs an escape from chronic pain. I find no help with aspirin or any other pain killers. I am allergic to them all. Gabapentin gave me hope but then I began hallucinating, had balance and vertigo problems, my tinnitus worsened, I gained 10 pounds and I couldn't think.
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My coping support comes from an electric fan on my feet day and night. Not being in any temp over 65 degrees summer or winter. An infrared lamp on my feet and cutting sugar out of my diet except for piece of pie or cake on Christmas or Thanksgiving. I really look forward to one or two mixed drinks a week as tolerated. This is a journey of constant search for what works for you. Hank has been my search engine! By the way, sometimes I get a little relief with soaking my feet in hot water then put them in front of the fan to cool off quickly. I think it confuses the nerves.