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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Replies to "Dear Chris (and fellow Connect supporters) ~ I'd like to elaborate on the importance and timing..."
I am going to read your post to her when she wakes up this morning (she hates computers -hence why I am on this blog and not she; I do all online research on her behalf).
Rachel, my wife said this regarding your post of yesterday:
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Rachel, Hank just read to me your post. I understand and sympathize with your dilemma. I believe chronic pain offers an opportunity for "any" weakness in your body to flare and thrive. Even though I know my suffering will increase when I have a drink or eat something containing sugar -- sometimes you just need a "vacation", a diversion from pain. So don't be too hard on yourself. Everyone needs an escape from chronic pain. I find no help with aspirin or any other pain killers. I am allergic to them all. Gabapentin gave me hope but then I began hallucinating, had balance and vertigo problems, my tinnitus worsened, I gained 10 pounds and I couldn't think.
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My coping support comes from an electric fan on my feet day and night. Not being in any temp over 65 degrees summer or winter. An infrared lamp on my feet and cutting sugar out of my diet except for piece of pie or cake on Christmas or Thanksgiving. I really look forward to one or two mixed drinks a week as tolerated. This is a journey of constant search for what works for you. Hank has been my search engine! By the way, sometimes I get a little relief with soaking my feet in hot water then put them in front of the fan to cool off quickly. I think it confuses the nerves.
You, Rachel, and others in the group here, are SO INSPIRING. Without getting too metaphysical I just want to say that those of you living your lives in such a state of ongoing crisis (my wife is dealing with PN not me) I truly believe it is for a reason. God or the universe or however you want to think of who/what is in charge here has some plan. I truly believe this is not for no reason. I am so sorry for the suffering which I see my wife go through as well as what I read in the various forums about living with pain, but all I can say is it is good to see you not lose hope. Although your world may become very very focused on the pain to the exclusion of much that others enjoy and take for granted, I have seen firsthand the strength that comes out of it. So the fact that through all of this you are not giving up Rachel is very inspiring. Best, Hank