I dont know if this will help but have you tried to see a FUNCTIONAL MEDICINE Dr? Conventional med dr's will not help you. They only treat symptoms and wont try to figure out why things are the way they are. If it can't be seen on an xray, MRI or simple typical blood tests, they will not keep digging. There is a lot of info out there now about long covid being a MAST CELL issue. Find a functional medicine dr and see if they will help with certain antihistamines (not benadryl) and low dose anti inflammatory meds like Naltrexone which is used in low doses for post viral inflammation. I am only 11 weeks in to my meds (Ketotifen 1 mg every 12 hours and Naltexone 4.5 mg nightly before bed) but I know so many people that are bedridden from long covid and these meds seem to at least help me feed myself and keep house. Believe me I am NOT healthy like I was before. I was on a horse drill team with teenagers prior to getting long covid and I cannot do that now but I am at least 40% functioning. There is no way I could work if I were still nursing at the hospital though. My body is in too much pain with the muscle cramps and skin burning to be able to focus on a job. My heart pounds 50% of the day but my dr Rx'd Low dose Ativan 0.25 mg for that and it helps a little. It also helps with the tremors and the skin burning. It's not perfect by no means. There are moments where the med fails but the majority of my day is no longer filled with contemplating suicide.