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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@cfetoday

I understand your anguish. I have had my third surgery for DCIS. Intermediate grade. First two surgeries could not get a clear margin. Waiting 3 weeks for the path report on this last surgery. I am also very confused on the treatment of this. The first surgeon told me it will definitely turn into an invasive cancer. How does he know that? The surgeries were not bad and I did prefer removing it rather than working about it being there, but three surgeries!

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Replies to "I understand your anguish. I have had my third surgery for DCIS. Intermediate grade. First two..."

I’m sorry you are going through this and ugh, I hear ya!
I will also be having my 3rd surgery coming up. My surgeon said I had clear margins and would not need to take anymore out and then I met with my Radiation and Medical Oncologist’s and they both agree my margins are way too close and do need more taken out before I can start Radiation.
I have had a couple complications from the other 2 surgeries and I am actually not too impressed with a few things my surgeon has done, so I have an appointment with a different one on Monday for a consultation. Hopefully it goes well and this is the last surgery!
I really hope you get your Path results soon. The waiting is the worst!
And praying you now have clear margins!

cfetoday,
I wanted to let you know I met with the new surgeon and he was awesome. He wasn’t surprised and agrees with my Oncologists that more needs to be taken out.

He also said that since DCIS is invisible, sometimes it does take more than one try to get clear margins and that he had to go back 4 times with one of his patients. I don’t think it’s extremely common, but good to know that apparently it does happen sometimes.