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Looking for info on medications for Bullous pemphigoid
Autoimmune Diseases | Last Active: Sep 17, 2023 | Replies (15)Comment receiving replies
I was diagnosed when I was 67 in 2020.
Topical salves don’t work, prednisone is a bandaid, Cellcept and Chemotherapy isolates you from being social.
Diet makes a big difference in limiting the occurrence of blisters.
I know I have to avoid dairy, chocolate, tomatoes and citrus.
I developed a blister that almost closed by throat after eating citrus.
I had several blisters erupt in my navel, I was packing a cotton ball to cushion the blisters.
Then developed a sensitivity to adhesive.
I’m hoping to eat chocolate and cheese again someday.
Replies to "I was diagnosed when I was 67 in 2020. Topical salves don’t work, prednisone is a..."
I am so sorry to hear about your disease progression. I was just diagnosed thru a blood test in August. I am 75. I had one rather large blister that has healed by conservative treatment, after my dermatologist drained it, that included rinsing with soap and water, applying Aquaphor ointment and bandaging until it healed. My derm suggested I use a Rx steroid cream but I decided not to because I considered the side effects to be an issue for me. Everyone is different in how their body reacts and responds to treatment. I use a tiny amount of over the counter hydrocortisone cream when I see a little blister starting to form and that dries it up. On the homeopathic medicine side, I have began taking a cell salt Nat Mur that regulates water in the body which is how the blisters form between the layers of the skin. An anti-inflammatory diet avoiding sugary foods and drinks may help calm the immune system. I wish you well.
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@debwal Welcome to Mayo Clinic Connect! Members share their concerns about their health and give tips and solutions to other members. I am sorry for the problems with the Bullous pemphigoid. What do you do to protect your clothes from a burst blister?
https://www.mayoclinic.org/diseases-conditions/bullous-pemphigoid/symptoms-causes/syc-20350414. It sounds like you have good control over your condition
This information from The Mayo Clinic is very informative and mentions treatment. You said that CellCept and chemotherapy “isolates you from being social.” Can you tell me more about your concerns with them?