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Anyone taken Evenity (romosozumab) for Osteoporosis?

Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)
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@lab54

I also have Neuropathy in my feet. After my first set of injections, I did notice swelling in my ankles & feet. I do take Ropinarole for the RLS & Gabapentin for the Neuropathy. Nauseous is mentioned as a side effect but not a common one. The two major side effects are jaw cancer & headaches. I also noticed my arms have been very painful as well. The most disturbing side effect is the bad rash on my face. I’m on Doxycycline & an antibiotic gel too calm down the rash. My Rheumatologist told me it wasn’t a deal breaker that my ankles & feet were swollen or a rash on my face. She wants me too continue with Evenity because she worked so hard too get it approved. Time too find a new Rheumatologist, ya think?

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Replies to "I also have Neuropathy in my feet. After my first set of injections, I did notice..."
ppat4pr | @ppat4pr | Sep 14, 2023

I m not knowledgble on this subject but I agree with you re new physician.

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lashu | @lashu | Sep 14, 2023

Thanks for your openness about these issues, I really appreciate it. My neuropathy has been around for at least thirty years and nothing has helped much. Gabapentin alone does not help a great deal but lately, with amatriptiline, it seems to alleviate it to a considerable extent! I hope it continues in this way.
The jaw is threatened with necrosis, but cancer is something I had not seen before, though it makes sense, since necrosis is dying tissue and I've found mixed reviews on the extent to which anything will help the problem. If caught early it has been said that antibiotics work, but even that was an ify promise.
Painful joints seems to happen frequently with patients. I had not heard of a rash before, but I certainly believe you. Swollen ankles and feet are also a new symptom to me, but it makes sense insofar as cardio and stroke issues are warned when taking it and those both engage circulatory health.
I postponed the injection until October, under a caution from someone in health field. So I await further advice and information.
How serious were your T scores, or however your OP was diagnosed. Am praying for your good outcomes, somehow, in spite of these problems.

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