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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@sparshall

Jim, CIDP is a rare, incurable autoimmune form of neuropathy. It’s a “cousin” disease to multiple sclerosis. It causes constant inflammation of the nerves. IVIG calms the inflammation and, if the patient is lucky, prevents further damage. But CIDP is a progressive disease and most people will get worse, either quickly or slowly. It’s also a relapsing/remitting disease. I’ve had two serious relapses in less than three years, at times when I had thought I was doing well. Increasing my IVIG dose pulled me out of relapse both times.

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Replies to "Jim, CIDP is a rare, incurable autoimmune form of neuropathy. It’s a “cousin” disease to multiple..."

@sparshall

My youngest sister has had MS for quite a few years, as well as pn. I was tested negative for MS, for which I'm grateful. I feel embarrassed for talking about my pain when I read and hear the stories of others who are suffering way more than I. I'm reminded of how fortunate I am and how generously God has provided for me.

Thank you for the explanation.

Jim