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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
I have idiopathic small fiber peripheral polyneuropathy. I'm not familiar with the implication of the added "inflammatory". The neurologist has mentioned the demyelinating aspect, but never used it in the name of the particular neuropathy I have
I've seen others mention IVIG, but have never asked my neurologist about it. I had a spinal cord stimulator implant in June of 2017, and it made a major change in my pain level.
Finding a definitive cure for neuropathy would be great, but I'm not sure it will happen in my lifetime. Someday. In the meantime we do what we can to manage the changes as they come.
Jim
Replies to "@sparshall I have idiopathic small fiber peripheral polyneuropathy. I'm not familiar with the implication of the..."
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Jim, CIDP is a rare, incurable autoimmune form of neuropathy. It’s a “cousin” disease to multiple sclerosis. It causes constant inflammation of the nerves. IVIG calms the inflammation and, if the patient is lucky, prevents further damage. But CIDP is a progressive disease and most people will get worse, either quickly or slowly. It’s also a relapsing/remitting disease. I’ve had two serious relapses in less than three years, at times when I had thought I was doing well. Increasing my IVIG dose pulled me out of relapse both times.