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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)
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@sparshall

I have chronic inflammatory demyelinating polyneuropathy (CIDP), an incurable autoimmune disease that destroys the nerves in the legs/feet and arms/hands. Fortunately, I have very little damage in my arms, but I have lost 80% of the nerve function in both legs. (It’s a symmetrical disease.) I receive IVIG regularly to keep it from getting worse. I can use a cane inside our house, but have to be in a wheelchair away from home.

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Replies to "I have chronic inflammatory demyelinating polyneuropathy (CIDP), an incurable autoimmune disease that destroys the nerves in..."
Jim, Volunteer Mentor | @jimhd | Jan 15, 2020

@sparshall

I have idiopathic small fiber peripheral polyneuropathy. I'm not familiar with the implication of the added "inflammatory". The neurologist has mentioned the demyelinating aspect, but never used it in the name of the particular neuropathy I have

I've seen others mention IVIG, but have never asked my neurologist about it. I had a spinal cord stimulator implant in June of 2017, and it made a major change in my pain level.

Finding a definitive cure for neuropathy would be great, but I'm not sure it will happen in my lifetime. Someday. In the meantime we do what we can to manage the changes as they come.

Jim

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