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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)
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@ginthert

I know the feeling....i was told my doctor" my nerves get on my nerves". I have tried almost everything over the 16 years i have had it. My best was when i was on ivig treatments but dr took me iff after 8 years😥. Hang in there..sometimes when i get all balled up..i change what i am doing..if you can take a short walk. It takes my mind off of my nerves.

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Jim, Volunteer Mentor | @jimhd | Jan 3, 2020

@ginthert

That's really tough that your doctor took you off the one thing that was helping. Did they give you a satisfactory reason, and get on a new medication that works as well as the IVIG?

Jim

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Rachel, Volunteer Mentor | @rwinney | Jan 14, 2020

Hi there. I'm wondering why on earth your Dr took you off of IVIG??? Is there a max number of years you can safely be on it? Was it about insurance? Did your condition change? Inquiring minds would like to know, if you don't mind sharing. Thank you.
Rachel

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