← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@linneyshop

lss
Hi, I was diagnosed in spring 2022 and have been on Pred since then. I started at 20 mg and came down to 2 mg about 1mg /month at my docs request. My problem is that my pain level and stiffness and everything else is almost back to where I started. My sed rate is low so the doc is questioning the original diagnosis but my symptoms are right on. Has anyone else had this experience or suggestions?

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Replies to "lss Hi, I was diagnosed in spring 2022 and have been on Pred since then. I..."

My labs were never abnormal. My PCP didn’t think I had PMR bc of this but I sure checked all the boxes for PMR. Rheumatologist diagnosed it as PMR. Labs not always a way to diagnose it. I manage my own prednisone based on how I feel but mindful I need to take as little as possible. I tried methotrexate for 6 mos but I couldn’t tell that it did anything but make me nauseated. Good luck.