← Return to Sjögren’s Syndrome: how do you manage the symptoms?

Discussion
Comment receiving replies
@jmb73

I have had Sjogren's for over 40 years and at the beginning, my rheumatologist kept doing blood work. Sometimes my tests were negative and sometimes they were very positive. I changed rheumatologists when my current one didn't take Medicare. The new one said the blood tests always varied and once you have Sjogren's- unfortunately- you have it forever.
I take Systane Ultra for my dry eyes and that helps. I also wash them with an eye wash every day and that prevents blepharitis. I do have plugs in my eyes and they really help. I had gamma brain surgery in 2018 and the neuro surgeon said to take cbd as it helps with nausea and headaches. He also said that you "can't overdose on straight CBD". My pain has gotten worse to I now take CBD and TSH- 1-1. I found that eliminates the high and only eliminates the pain.
Good luck

Jump to this post


Replies to "I have had Sjogren's for over 40 years and at the beginning, my rheumatologist kept doing..."

I have had Sjogren's for many years and take Pilocarpine for dry
eyes and dry mouth. I couldn't live without it. I just started cbd
for neuropathy in my feet. Just wait and see what happens.
Neuropathy can drive you crazy.