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Covid shot, MAC, and Smbacort

MAC & Bronchiectasis | Last Active: Sep 20, 2023 | Replies (20)
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@lilianna

Hi, Sue,
how long did you take antibiotics I wonder. I saw my ID doctor yesterday and she said I would be taking antibiotics for two years (I started in April 2023) and then she will order bronchoscopy and ct scan. No sputum tests either- that is her idea of treatment MAC. The indication that meds work is how I feel. I am just sitting and thinking that I have so many questions now- yesterday I was not prepared for this info so I will address my concerns during the next visit, I guess.

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Replies to "Hi, Sue, how long did you take antibiotics I wonder. I saw my ID doctor yesterday..."
Sue, Volunteer Mentor | @sueinmn | Sep 14, 2023

Hmm...usually the sputum cultures are repeated every 3 months while on the meds to determine when you "convert" to negative for MAC. That starts the 12 month "countdown " to cease antibiotics. You continue to test every 3 months to be sure you stay clear. Also one protocol says if you don't convert by 12 months, it is time to consider adding or changing meds, or changing frequency.
It sounds like this doctor is not up-to-date on managing MAC treatment.
Do you have an option to change pulmonologists?
Also, what airway clearance routine did she teach you?

Sue

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