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Anyone taken Evenity (romosozumab) for Osteoporosis?

Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)
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@lashu

Hi lab54, I am wondering how you are doing now, a month later from your August 12 posting. I am due to start tomorrow with my first Evenity infusion. I have neuropathy in my feet that gets in the way of a good night's sleep for thirty years now. And sometimes, also, too much energy to go to sleep. My concern is the neuropathy because tingling in feet is one possible side effect that is mentioned. Did the doctors tell you why you felt nauseous? I don't remember reading that as a side effect.

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Replies to "Hi lab54, I am wondering how you are doing now, a month later from your August..."
lab54 | @lab54 | Sep 14, 2023

I also have Neuropathy in my feet. After my first set of injections, I did notice swelling in my ankles & feet. I do take Ropinarole for the RLS & Gabapentin for the Neuropathy. Nauseous is mentioned as a side effect but not a common one. The two major side effects are jaw cancer & headaches. I also noticed my arms have been very painful as well. The most disturbing side effect is the bad rash on my face. I’m on Doxycycline & an antibiotic gel too calm down the rash. My Rheumatologist told me it wasn’t a deal breaker that my ankles & feet were swollen or a rash on my face. She wants me too continue with Evenity because she worked so hard too get it approved. Time too find a new Rheumatologist, ya think?

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