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← Return to Off Prednisone for PMR
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Autoimmune Diseases | Last Active: Sep 21, 2023 | Replies (15)
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John; thanks for your input and good for you being off prednisone for 5 years. I hope I candy the same thing in 5 years. You and I agree that keep moving is very important. It is too easy to say I'm hurting so not today.
Replies to "John; thanks for your input and good for you being off prednisone for 5 years. I..."
I hope I can do the same and I hafta cut back on the candy!
The bod said no to alcohol (unequivocally -- multi-day, killer migraines) a few years ago, near the start of my PMR, so I'm off that, but sugar? Sugar is my last drug, and I like it far too much. Right now I can't imagine giving it up.
That said, I thought giving up wine would be hard, would leave me pining for wining, but it turned out to be more of a "meh; whatever." Surprising!
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Took me a year working with an endocrinologist to get off methypred. We used hydrocortisone in lieu of until I could make the break. I miss the medrol every single day as I am not on anything but coated aspirin which doesn't touch the pain but I also have pain/fatigue from post polio syndrome. But I escaped diabetes but not osteoporosis from 12 years on pred/medrol but it did help the pain and ease of movement. Shame it is so destructive otherwise.
BTW, my dermatologist with R/A found articles about metformin being used for r/a and has gotten relief from that. I found the articles she mentioned which were mainly S. Korean doctors. I will ask my rheum. about this possiblity at next appt.