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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Replies to "I joined the facebook solutions group but something didn't sit right with me. I found a..."
@rosy33 I have to disagree with you. I have no idea what doesn't sit right with you but I have been a member of the group since it's early start in 2016 and it is most definitely not a scam. To start with, it is a not for profit 501c3 organization registered in the State of Florida. The second thing is that the only supplement the group currently sells is the Manitoba Hemp Oil. They only did this because members were getting expired/bad hemp oil when ordering online through Amazon due to shelf life and stocking by the companies. The person who started the group has a commercial size refrigerator and made a deal with the hemp oil manufacturer to direct ship quantities to his address where he can refrigerate and keep them fresh until a member orders them. Any profits from the sale of the hemp oil to members goes to a Help Another Member program (H.A.M.) which the group started to provide members who cannot afford the protocol a 30 day supply until they can purchase it on their own. I regularly donate money to support the program myself. I would not give my money to support anything that is a scam to people with neuropathy.
If you do a search of the group on Facebook using the phrase #theprotocolworks, you will find the stories written by each of the members who have been helped and no longer struggle with their pain symptoms from neuropathy. You can also find my story in the group. I've also posted how it has helped me in a post earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985. They also are no longer dependent on pain medications and have been able to taper off. You can also search the Files section of the group to find the different supporting research for each of the supplements and how they help with providing the nutrition needed by nerves.
To your point, there are definitely a lot of scams out there taking money from people suffering from neuropathy and you have to do your own research and make your own decisions based on what you believe. I can tell you that the group does have some haters since the person that started the Solutions to Peripheral Neuropathy Pain & Discomfort group was a member of another group that had some issues which is why he started a new group for folks that were interested in getting off of the brain numbing medications that continually need to be increased to make the pain go away (my words/thoughts). The group may not sit well with some people because they want you to do your own research in the group before asking questions. They've had quite a few bad actors from the other group that will join with fake names and spread discontent.
Here's the link you are referring to which is a report written by another groups Facebook group's member/leader. If you read the rebuttals you will have a better understanding of how this so called scam report came about:
https://www.ripoffreport.com/reports/bob-diamond/internet/bob-diamond-solutions-to-pn-neuropathy-treatment-group-scam-bob-diamond-social-influe-1370243
Happy Friday and hoping for a pain free day for all!
John