← Return to Double Vision and Autoimmune Diseases like MG: Can anyone relate?

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@kay56

For Myasthenia Gravis, prednisone does usually help symptoms quickly. However, the side effects are bothersome for most. Another medication is usually prescribed along WITH prednisone and prednisone dosage is scaled down.
I have Myasthenia Gravis (MG). I have researched every REPUATABLE sites for all MG information. Finding information and getting correct treatment were definitely not the same! Once I found a neuerologist (after 2 yrs) and got the correct treatment, my MG stabilized. I never did use prednisone, my choice not to. IVig infusions stabilized my MG until the IMURAN (azathioprine) was able to 'hold its own'. I have only taken the Imuran for more than 3 years and am doing well.
Once my MG was stabilized, I started the MG RGV Support Group in the Rio Grande Valley way down deep in Texas. I continue to research MG. MG education can save your life! Many do not know the difference between a cholinergic crisis and a Myasthenia Gravis crisis! Two of my support group members were only prescribed Mestinon by two different neurologists. One person was being told to take more Mestinon, take more Mestinon until he was up to 16 tablets a day! He was bordering on a cholinergic crisis. If how much Mestinon has been taken and MORE Mestinon is given thinking Myasthenia crisis instead of cholinergic crises can have very serious consequences!
It is most definitely important that your medical professional KNOWS MG!!

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Replies to "For Myasthenia Gravis, prednisone does usually help symptoms quickly. However, the side effects are bothersome for..."

Wow @kay56 Welcome to Mayo Clinic Connect! We’re so glad to have you here to share with other members. You are so right, education is THE key to dealing with autoimmune diseases! You seem to have done all the correct things and you started a support group. The Autoimmune aAssoc is have a 2 day virtual conference in October that you may want to check out. They also have great newsletters.
https://www.accelevents.com/e/aicommunitysummit2023?utm_source=ainews&utm_medium=email&utm_content=reg&utm_campaign=summit23
If I may ask, how did you find Connect?