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I am a newbie x 2 weeks. It is invasive lobular carcinoma. My surgery for a lumpectomy with a larger margin is in 5 days. I am a RN who worked as an outpatient and my latest employment was a nurse in a inhouse hospice facility so I have seen and know more than I want so yes, I am not so scared of the diagnosis but it is the "Invasive" portion that I am scared about. I have read up on my diagnosis which probably is not be a good thing to do but I did it anyway. My surgeon oncologist said I will need radiation of unknown length of time and a anti-estrogen receptive oral therapy and I read for 5 to 10 years duration. How prone is metastasis disease with this oral medication route? Does anyone know the answer to my question.
I don't need an exact answer but I would like to see if one could tell me what they think.
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Hi @jmc7003211953, I think you question about the likelihood of recurrence with or without anti-estrogen receptive oral therapy is a reasonable question. As an RN, you know that the answers are never complete guarantees. There are so many variables.
I think these 2 resources may be helpful for you:
- About Oncotype DX https://breastcancernow.org/about-breast-cancer/diagnosis/oncotype-dx/
- Is There a Role for Oncotype Dx Testing in Invasive Lobular Carcinoma? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4995885/
Has Oncotype been discussed with you? Is it appropriate for your decision making? How are you doing?