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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@upnort

I have recently been diagnosed with a form of myelopathy (inflamation on the spine with no known cause). My symptoms have been persistant for the last 18 months (burning, tingling, and numbness in feet, legs, knees, thighs, buttocks, groin, waist area). Tried IV prednisone (8 weeks) and oral prednisone, 60 mg daily, ( 5 months.). Endured harsh side effects and currently weaning off the prednisone. No relief. Symptoms persist 24/7. Next up: mycophenolate(CellCept), another drug that suppresses the immune system followed by a long list of serious side effects, including the risk of skin cancer or lymphoma. Also comes with the FDA Black Box warning. Regular blood checks also required. This drug was designed to prevent rejection of transplanted organs, but evidently is an "off-label" use for fighting inflamation. Because of the severe side effects and other health risks associated with this drug, I am extremely hesitant to begin a regimen to help ease my symptoms. My quality of life has suffered greatly, and I am looking for alternatives. Any suggestions?

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Replies to "I have recently been diagnosed with a form of myelopathy (inflamation on the spine with no..."

Hello @upnort, Welcome to Connect. There is another discussion on myelopathy that I think you might find more helpful. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where you can meet other members sharing your symptoms and learn what they have found that helps.

> Groups > Brain & Nervous System > Want to know if myelopathy is still a form of neuropathy
-- https://connect.mayoclinic.org/discussion/want-to-know-if-myelopathy-is-still-a-form-of-neuropathy-y4-1/

Have you tried any anti-inflammatory supplements like turmeric or has your doctor given you any suggestions?
There is a post in the above discussion that you might find helpful...
-- https://connect.mayoclinic.org/discussion/want-to-know-if-myelopathy-is-still-a-form-of-neuropathy-y4-1/?pg=1#comment-312903