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@dloos

I don’t think I can get to Mayo. I wish I could.
I do feel totally misunderstood by the many, many doctors I have seen. Seems like by now our issues would be credible.
What they offer me is antidepressant, and I have tried several. I do not tolerate any I have been prescribed. I feel so adrift and searching the internet for some clue as to what has helped someone else. I know it is a fools errand because our symptoms are so different and particular to each case. But, I have tried lots of different things that have worked for others.
I get what you mean when you say moderation, and I believe I am not pushing myself. I rarely leave my home except for a few healthcare people I still see. I often comment to my husband that these appointments are a waste of time, but I can’t really give up. My family is very supportive or I would not have made it this far.
If I felt stable maybe I could think of myself as the recovering heart patient or recovering athlete.
My symptoms are worsening and I can’t help but panic to think where I will be in 3-6 months when I’m barely functioning now. It has taken me sixteen months to get in the shape I’m in now.

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I joined the COVID Loong-Haulers Discussion Group on Facebook. It has saved my sanity many a time over the last 17 months. You aren't allowed to give medical advice, as each person is affected uniquely and the care they need is tailored,. But can share what has worked for you and your symptoms. If not the Mayo Clinic, you might look for a CoVid Long Haul Clinic near you. OHSU has been wonderful. My doctor admits that there are still more questions than answers, but at least she believes me and doesn't gaslight me by saying its depression or being overweight, or whatever other reasons doctors give when they are too embarrassed to admit they just don't know.