I am so sorry. I do not have that, but what agony!!
I notice that you are grateful it’s not worse— which is such a mature view. Because… sometimes how we respond to each other is unhelpful. It really doesn’t help me to hear, “well, just be glad you don’t have MY problems/pain/experiences”. (It’s ironic that so many of us feel like the outside ‘world’ doesn’t understand what’s going on — and they don’t; but then we turn around and do that very thing to other long haulers)
I know that ear pain or dysfunction for ME (in my past functional life) was very like a sore tooth: sure I have other functioning systems, —but ALL I can feel is that tooth!
And what you’re describing is SO much worse than that! What a maddening and isolating symptom! Again— no help here, but I am so, SO sorry!