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@parrot53

Thank you, Lori for keeping me in the loop. I am currently inactive on the transplant list with exception points in October this year. I am still doing fairly well and not currently considering going active. My biggest fear is that my condition will deteriorate and I will then be ineligible for LT. in the meantime I am taking each day to enjoy my family, friends, and current health. It is sometimes stressful but I am here and intend to enjoy each day as a gift.
Thanks again for all the members here who take the time to share their thoughts and experiences.

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Replies to "Thank you, Lori for keeping me in the loop. I am currently inactive on the transplant..."

We surely never know what direction life will take us, do we?! You’re in a tricky period of waiting for a transplant but not really wanting anything to change that would bring it about sooner!
I think the important thing to know is that you have a game plan in the wings should anything change for you. That gives you the comfort to keep pushing forward and living life to the fullest. I’m like you, every day is a gift! I think when we realize that, we don’t take anything for granted and live in the moment. Dwelling on ‘what ifs’ just creates undue worry and robs us of precious time. ☺️
Wishing you continued good health!
I have to ask…do you have a parrot? We had a cantankerous African Grey for 35+ years…and the scars to prove it! LOL. But he was a prolific talker and quite entertaining.

@parrot53, I am well familiar with your fear of time running out. I think that your approach to this possible reality elevates you, your family, your friends to a higher level of appreciation/enjoyment for each day that most people never experience.
I wish there was a way to capture and then to release your attitude to everyone facing a chronic condition. Keep on looking for the gift that each day brings.

I'm glad that you are being treated at Mayo. 🤍