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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@artscaping

Good evening @betty1954, Welcome to Connect. I am glad you found this forum. I was just about to sign off for the evening when I saw your post. There is a note of discouragement and disappointment in your words. Since I cannot see you or hear you I have to depend on your words. I don't want to read too much into them......just sort of get the feeling that some frustration has you concerned.

You wrote, "he dismissed me". Do you mean that he refused to serve you as a patient? Or that your treatment with him was complete?

One of the most difficult things to hear is that there is no cure for neuropathy. Those of us so afflicted are sort of left to our own resources and the attention of patient-centered clinicians and practitioners. I see that you are using gabapentin and essential oils plus your blood pressure and thyroid medications.

I didn't count your orthopedic surgeries and yet I know you have undergone some extensive surgical efforts. I think you even have me beat. Only now do i know how my reckless lifestyle and resulting surgeries may have contributed to my neuropathy. You didn't mention SFN or small fiber neuropathy. Has that been ruled out?

If you could eliminate one disturbing symptom what would that be? Pain? Lack of mobility? Depression? Anxiety? Let's begin on the same page.....the page of what matters most. I look forward to hearing from you.

May you be free of suffering this evening and have a refreshing sleep. Chris

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Replies to "Good evening @betty1954, Welcome to Connect. I am glad you found this forum. I was just..."

Thanks for replying Chris. I am very discouraged I guess. My pain never stops. The spasms are ongoing and I try to always smile and tell everyone I am great. I know my primary doctor who is wonderful wants to help but he has also seen doors closed without any answers given. I will have to read up on SFN and small fiber neuropathy. That is something that I have never heard about. I sometimes feel like no one wants to take the time to just sit down and explain to me what to expect or how to deal with what is happening to my body. I feel shoved aside when it comes to doctors explaining anything. I print off each report after seeing a doctor and that is the way I learn more about what is going on than from the doctors. I guess I am looking for a plan on how to deal with this. I am a doer not a sit and let it happen person. I have yet to have someone tell me this is what you can do to get better or feel better or feel more informed. Everyday is more pain and more spasms and no answers.