Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

@kcac

My wife age 61 in FL went to a new Doc in Fl about 18 months ago. She had the usual blood work, chest E-Ray and Cologuard test. She went back the following week and all tests were negative but Cologuard test not yet received. They were to call when results came in. About 2 months late my wife realized she had not heard about colorguard results and called the Doctors office and told they could not locate them but would call back. They never did and she forgot about and I assumed they must have been negative. Two months ago she goes for OB/GYN check up and was having issues with abdominal pain, and various symptoms related to female problems and a compete hysterectomy was planned for 7/3/23. The OB/GYN's office sent for medical records from the Doctors office that did the cologuard and in my wife's records found a positive cologuard test from about 18 months back. That Doc that did that had the cologuard records all the time then called yesterday (a trying to CYA call) and said she had called my wife and told her the result were positive which was a lie, as you do not forget a call like that. Nor would I, as my wife would surely have told me. Anyway, OB?GYN surgery postposed awaiting a colonscopy. Since symptoms of female issues can be similar to colon cancer issues we are obviously concerned. How much of a problem could that 18 month delay cause if it is cancer? We are assuming very big since early detection is the biggest life saver for this type of cancer. Very concerned couple!

Jump to this post

Wondering if your wife received a letter from Colorguard saying that her test results were positive. know that I did. And made plans for a colonoscopy. It was my understanding that my primary care doctor received the notification also however they did not notify me of the positive test results.
Always good to follow up for yourself.
I don't follow that no news is good news.
Follow up myself.
Hope all goes well.

REPLY

I received notice on Saturday that I had a positive Cologuard and have been struggling with horrible thoughts ever since. I cant seem to calm my mind or worry and am just a mess! I know I shouldnt jump to any conclusions yet but its so hard not to. What if I am one of the unlucky ones? I am 45 with no symptoms. I have an appt with the dr tomorrow to talk about scheduling a colonoscopy but I just need some reassurance. Its hard to function and work and take care of a family and household with all these horrible thoughts running through my mind. I wish I hadnt done the Cologuard and did the colonoscopy instead. I wouldve saved myself so much anguish and sleepless nights. It does help to read through all these comments though. I have gone to it several times since Saturday to try and make myself feel better!

REPLY

Hi! I did a cologuard test back in December of 2022. It came back negative! In March I had surgery to remove what I thought was hemorrhoids. It turned out to be anal cancer. The worst day of my life was waking up from surgery and my husband telling me I had cancer. I have gone through chemo and radiation which was the hardest and toughest thing I have ever done! I survived and will be getting my petscan in 10 days to show I am cancer free! I am praying of course as they say my chances are 65/35% chance they got it all! I know this is very scary for you! Praying your colonoscopy shows no cancer but please know there is life after cancer!

REPLY

Yes, mine came back positive. Had the dreaded colonoscopy and get removed 5 polyps that were tested and were non-cancerous at this point. It is difficult to calm your mind. Take it one day at a time. I would suggest you get the colonoscopy.

REPLY
@colesnotknappin

I received notice on Saturday that I had a positive Cologuard and have been struggling with horrible thoughts ever since. I cant seem to calm my mind or worry and am just a mess! I know I shouldnt jump to any conclusions yet but its so hard not to. What if I am one of the unlucky ones? I am 45 with no symptoms. I have an appt with the dr tomorrow to talk about scheduling a colonoscopy but I just need some reassurance. Its hard to function and work and take care of a family and household with all these horrible thoughts running through my mind. I wish I hadnt done the Cologuard and did the colonoscopy instead. I wouldve saved myself so much anguish and sleepless nights. It does help to read through all these comments though. I have gone to it several times since Saturday to try and make myself feel better!

Jump to this post

@colesnotknappin, have you had the colonoscopy? How are you doing?

REPLY
@colleenyoung

@colesnotknappin, have you had the colonoscopy? How are you doing?

Jump to this post

Hello and thanks for checking in. I just completed my colonoscopy yesterday. Wow that was an emotional journey for me! Thinking I might wake up to hearing I have cancer thanks to the cologuard results. But thank GOD it was a false positive! My dr said he hates the cologuard tests. I wish I wouldve just went straight for the colonoscopy, it wouldve saved days and days of severe anxiety and mental breakdowns.

REPLY
@colesnotknappin

Hello and thanks for checking in. I just completed my colonoscopy yesterday. Wow that was an emotional journey for me! Thinking I might wake up to hearing I have cancer thanks to the cologuard results. But thank GOD it was a false positive! My dr said he hates the cologuard tests. I wish I wouldve just went straight for the colonoscopy, it wouldve saved days and days of severe anxiety and mental breakdowns.

Jump to this post

Happy dance!

REPLY
In reply to @colleenyoung "Happy dance!" + (show)
@colleenyoung

Happy dance!

Jump to this post

Soooooooo relieved! And a new found appreciation for being healthy!

REPLY
@colesnotknappin

I received notice on Saturday that I had a positive Cologuard and have been struggling with horrible thoughts ever since. I cant seem to calm my mind or worry and am just a mess! I know I shouldnt jump to any conclusions yet but its so hard not to. What if I am one of the unlucky ones? I am 45 with no symptoms. I have an appt with the dr tomorrow to talk about scheduling a colonoscopy but I just need some reassurance. Its hard to function and work and take care of a family and household with all these horrible thoughts running through my mind. I wish I hadnt done the Cologuard and did the colonoscopy instead. I wouldve saved myself so much anguish and sleepless nights. It does help to read through all these comments though. I have gone to it several times since Saturday to try and make myself feel better!

Jump to this post

I received news of a positive test in July as well. I did my first test five years prior and it was negative. I have a colonoscopy scheduled in two weeks. I've been trying really hard not to worry so I keep reading everything I can get my hands on that would help ease my worries. I too have had no symptoms and find myself dreading every trip to the bathroom yet always take a good hard look before I flush! lol If anything, the positive test has forced me to get a colonoscopy at 56.... and if the results come back with little to worry about then the positive Cologuard served its purpose with me. Thanks for your posts about your experience... it has made me feel better going into the procedure. So glad yours came back just fine. 🙂

REPLY
@coolibrarian

I received news of a positive test in July as well. I did my first test five years prior and it was negative. I have a colonoscopy scheduled in two weeks. I've been trying really hard not to worry so I keep reading everything I can get my hands on that would help ease my worries. I too have had no symptoms and find myself dreading every trip to the bathroom yet always take a good hard look before I flush! lol If anything, the positive test has forced me to get a colonoscopy at 56.... and if the results come back with little to worry about then the positive Cologuard served its purpose with me. Thanks for your posts about your experience... it has made me feel better going into the procedure. So glad yours came back just fine. 🙂

Jump to this post

I had a colonscopy in 03 Was o k Again in 13 Was fine Now I am eighty and tech at clinic thought she was being easy on me so said I should have cologuard. I had seen that little blue and white box marching around the yard and pool and was not too impressed but I caved in anyway. I know I have internal hemorroids and bleed sometimes Not often. But Cologuard test was positive and said it sensed adenoma or colon cancer. Thanks for being real candid about everything which told me nothing specific. Just got to have colonscopy anyway which I should have insisted on in the first place. I am worried and am trying to search on internet and every piece of info I can find to see what my chance of having cancer is. What made it worse is they emailed me and told me but the link only lasted for 24 hrs Considering the test cost 500 to 600 dollars that was not much for my money. My aprn that I had been going to is sick and was in the midst changing to a doctor I had formerly. Getting records changed over and the anxiety it is causing is really nerve wracking. I am crying one day and being bold the next day and hoping I can get scheduled for the colonscopy soon. I will never take or reccomend the colorguard test to anyone.

REPLY
Please sign in or register to post a reply.