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Anyone been diagnosed with arachnoiditis after spine surgery?
Spine Health | Last Active: Sep 6 4:23pm | Replies (179)Comment receiving replies
I’m new to this support group so my apologies if I’m not following the correct format. I’ve suffered progressively for 4 years with what was initially diagnosed as chemo induced neuropathy. After many lumbar punctures, spinal blocks and epidural injections I’m worse than ever. Recent research reveals I may have adhesive arachnoiditis. I’m presently scheduled for major lumbar surgery and I’m concerned it will do more harm than good. Does anyone know of an AA specialist that would do a telemedicine consult?
Replies to "I’m new to this support group so my apologies if I’m not following the correct format...."
This is a support group. Maybe you can look at the "About Connect: Who, what and why" support group to find out where to ask for specific referral information.
I have Arachnoiditis. I got it 2 yrs ago from a botched epidural. There really are no drs that treat this , it’s not a common disease but becoming more so. I wouldn’t let anyone cut my spine if I were you. Just not a good idea if you indeed do have AA
Thank you for taking time to reply.
@esouppain Welcome to Connect. Here is a discussion about Arachnoiditis where you can connect with other members.
Spine Health - Anyone been diagnosed with arachnoiditis after spine surgery?
https://connect.mayoclinic.org/discussion/arachnoiditis-2/
Hello @esouppain and welcome to Mayo Clinic Connect. I noticed several members have joined you to respond.
You will notice I have moved your post into an existing discussion on this topic that @jenniferhunter also mentioned, which you can now find here:
- Anyone been diagnosed with arachnoiditis after spine surgery?: https://connect.mayoclinic.org/discussion/arachnoiditis-2/
Is there a reason you are keen on a telemedicine consult over an in person?
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I am new to this site. I keep looking for answers and comments from a Mayo Clinic expert on all the questions. I only see comments from people suffering. Am I missing something or is this just a support chat room????