← Return to Glutathione: What dosage do you use? Where do you get it?

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@susanp64

There is a phase 2 trial called ARINA-1 that is on-going. It is an inhaled glutathione mixture. I am beginning the trial next Monday. Hopefully very soon doctors will be able to prescribe this solution to us. If you haven’t considered the trial I would encourage you to search ARINA-1 on this forum and the thread started by Linda Esposito telling about this trial will come up. There is a link that will lead you to the criteria.

While it seems that we might be able to concoct our own mixtures having an approved treatment will benefit the entire bronchiectasis community. Dr. James Chalmers gave a very encouraging talk at the ELF/EMBARC 2023 Bronchiectasis Patient Conference. He indicated that there are some treatments that may be available as early as 2025 that are showing promise of returning patients to normal lung health, but the research cannot happen without our help!

I’m sure none of us have time for one more thing in our lives since the daily grind with this condition takes much time to control and often leaves us tired. I will be driving 10 hours round trip monthly for the next three months to participate in this trial. It is a big commitment but worth it if the result is a treatment that will be covered by insurance and available to us all!

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Replies to "There is a phase 2 trial called ARINA-1 that is on-going. It is an inhaled glutathione..."

@susanp64 looking forward to hearing about your experience on the upcoming clinical trial. It's great that there are new possible medications for bronchiectasis in clinical trials, which we all so desperately need!

Would you be able to provide a link to the talk by Dr. James Chalmers? I’m not sure where to look.
Thanks,

Thank you Susan.

I am waiting for my medical records from Kaiser and will forward them to the Arina-1 researcher for review. The study is testing a combination of vitamin C and glutathione in a nebulized solution. And, yes, our help is important to find a treatment that helps those of us suffering from bronchiectasis. I am not sure whether I'll be accepted but I do believe this is a study worth considering.