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Mucinous adenocarcinoma of lung Stage 1

Lung Cancer | Last Active: Jul 29 4:34pm | Replies (18)

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@yellowstonelady

* Is this pain typical this long after surgery? Yes, I had my upper right and middle right lobes removed in 2000 because of 10-12 cm mucinous adenocarcinoma (what we used to call bronchial alveolar carcinoma in 2000). It took about a year before I could wear my bra. I still have pain 23 years later especially when the weather changes which I have learned to block out. Like you, I can't take pain meds.

* should I have full lung capacity back? I never got my full capacity back. I was an active 46 year old when they took out my tumor in 2000. Ever since then I've had shortness of breath going up the slightest incline. Speak to your family doctor and see if they can do a pulmonary function test to check your lung capacity.

* Are there guidelines somewhere about flying cross country in pressurized cabin? Sorry, don't know.

* is there something else I should be doing? Walking really helps. Healthy weight helps. I tried very hard to regain my lung function the first 10 years by walking and taking 3-6 hours of yoga classes per week. But eventually I just gave up and accepted I will never get my lung function back.

I am so sorry this happened to you. Did you do a PET before surgery? I am curious what the SUV was on your spot before they took it out.

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Replies to "* Is this pain typical this long after surgery? Yes, I had my upper right and..."

Thanks!!! I was lucky in that my module was about a tenth the size of yours (15mm or 1.5cm) and located right on the edge of the lower left rib cage. Like I said, I try to find gratitude.

I had CT every year since 2019 when it was detected at 7mm on chest X-ray. They did the PET in 2021 and the max uptake was 1.2 of the nodule, which at that time was 9x9m. This year it was 15mm on CT so they decided to remove it and therefore didn’t do the PET again.