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Had lobectomy in 2020 still having radiating severe nerve pain.
Lung Cancer | Last Active: 1 day ago | Replies (114)Comment receiving replies
Yes. I was first diagnosed in 2000 and had a 10-12 cm tumor on the right side so my upper right and middle right lobes were removed followed by 7 weeks concurrent chemo and radiation. All was OK until 2021 when they found a 2 cm spot on my lower left lobe which biopsy showed was adenocarcinoma mucinous ( same as the old bronchial alveolar carcinoma called BAC which I had in 2000). I had that zapped with SBRT and it appears to have worked fine.
But early 2023 they found a new 1 cm spot on my right lung again. It is too difficult to biopsy so we've been watching it with CT's and seems to be stable. The PET showed a 2.7 SUV which is low energy possibly slow growing.
I am almost 70 so I am hoping it is something I can die with instead treating it. I am running out of good lung tissue.
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5 mos ago had a 1.5 cm Mucinous adenocarcinoma removed - along with the lower left lobe. We had watched it enlarge ever so slightly from 7mm to twice that over 4.5 years. I was told it is the “non smoker’s tumor” but he still took the entire lobe. I regret to this day not getting a second opinion because mine was located on the very periphery and all margins were clear -
and a wedge resection would have been very easy.
I have since learned that this tumor is frequently one people die with not of, because most often it is so slow growing.
All that said to say trust your own instincts and get second opinions. Your situation is different than mine. This will be your third run at it and that may be the critical difference in terms of how to react to it.