← Return to Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?

Discussion
me67 avatar

Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?

Sarcoma | Last Active: Oct 16 12:06pm | Replies (132)

Comment receiving replies
Profile picture for speedreader @speedreader

Hello, I had a tumor on my right calf and it was diagnosed as undifferentiated pleomorphic sarcoma last November.. I did 5 weeks of radiation to knock it down in size so they would not take my calf muscle. The tumor was removed on 2/15. The surgical wound was 5.5 inches across and exposed the calf muscle. It took me 6 months to get the wound healed and closed. I did high protein diet, Vitamin C IV treatments to granulate tissue , Hyperbaric Oxygen treatments and a skin graft. The surgery biopsy said over 70 percent kill rate of tumor cells and clear margins. Follow up MRI of surgical wound and CT scan of chest. As I approached my 6 month scan, I found 2 lumps in my groin. The results of the second biopsy show three lumps. There is a third lump deep in the pelvic cage. The Tumor Board is meeting to discuss treatment. I am guessing chemo. Once I get a treatment recommendation I wanted to hear how chemo has worked for other undifferentiated pleomorphic sarcoma patients. Thank you. speedreader

Jump to this post


Replies to "Hello, I had a tumor on my right calf and it was diagnosed as undifferentiated pleomorphic..."

Wow! I have recently been diagnosed with pleomorphic myxoid spindle cell neoplasm. Meeting with surgeon on Monday. Just wondering how it worked out.

Hi, how are you now? Did you get chemo treatments and how was it. I hope you got full recovery and wish you well.