← Return to Body aches and breathing Issues with recently placed Port: Thoughts?

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@rjjacobsen

I can't help much with the port issues. Like you, I got a port installed on the right side for chemo after 3C colon cancer and removal of the entire colon and 108 lymph nodes. Chemo was over in Dec 2021, so they're supposed to arranging for port removal.

I had only temporary discomfort (3-days to a week) after they installed it outpatient. If I remember correctly, I got my port in mid March 2021 and chemo started thereafter in mid April 2021.

I've posted about my chemo experience in detail in other discussions here, but it is a marathon. I had FolFox6 - typical for colon cancer. After the chemo starts you feel weaker and sicker until you bottom out at the 5th day, then you start rebounding and get back to perhaps 90-95% of where you were prior to the chemo, then if your blood work checks out, you get to do it again - typically on a two week cycle. You'll experience nausea, constipation, neuropathy, loss of taste, sensitivity to hot/cold liquids, extreme fatigue. Take one day at a time, one step at a time, realize the first week of each cycle you're pretty much useless, that you'll get better the second week and push through it. I can also say that prayer was very helpful to me.

They may interrupt the two week cycle if you need to stop because of fatigue or side-effects. They told me nobody gets through the typical 12 cycles without a break. In my case, the oxaliplatin caused such severe side effects that midway they decided to drop it. They kept the 42-hour infusions of 5-FU. I hated the initial injection of steroids in the beginning of chemo that I asked them to cut it back to 5ml from the normal 10ml.

There's a lot of useful information on the internet about FOLFOX6, how it's done, how it works and personal experiences.

The good news for both of us is that I'm thankfully still here to encourage you that you can do it.

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Replies to "I can't help much with the port issues. Like you, I got a port installed on..."

Thank you! They warned me that I may not be able to make it all the way through the oxaliplatin, but that we will go as long as I can tolerate at for. I have had so much support with my church group and my work I get weekly cards and prayers. I know there’s probably about 700 people praying for me most of which I do not know but through our prayer chain and Facebook and it really has been a huge difference in how I handle things, I am very grateful for the love and support I have been given, and that my walk with Jesus has become much more personal and forward. I will add you to my prayers. I’m so glad you are still with us! I was very lucky as far as the colon goes they only had to do a resection of the beginning portion. I was very lucky and everything is working pretty darn good.