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Anyone out there living with stage 4 lung cancer?

Lung Cancer | Last Active: Sep 24, 2023 | Replies (143)

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@sstiffel64

Genetics came back from lung tumor. Men1
Has anyone else had this and any drugs that target it?

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Replies to "Genetics came back from lung tumor. Men1 Has anyone else had this and any drugs that..."

@sstiffel64, if I understand correctly, genetic testing showed that your lung tumor is a genetic mutation, namely multiple endocrine neoplasia type 1 (MEN1). As you likely were told MEN1 is a hereditary condition associated with tumors of the endocrine (hormone producing) glands.

You may also wish to join the discussions in the Neuroendocrine Tumors (NETs) support group, like this one:
- Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?
https://connect.mayoclinic.org/discussion/men1/
While she doesn't have MEN1, @lls8000 also has a genetic lung cancer type.

@sstiffel64, how do the results of the genetic testing affect your treatment plan? What are next steps for you?