← Return to Anyone out there living with stage 4 lung cancer?

Discussion

Anyone out there living with stage 4 lung cancer?

Lung Cancer | Last Active: 16 hours ago | Replies (146)
Comment receiving replies
@sstiffel64

Genetics came back from lung tumor. Men1
Has anyone else had this and any drugs that target it?

Jump to this post

Replies to "Genetics came back from lung tumor. Men1 Has anyone else had this and any drugs that..."
Colleen Young, Connect Director | @colleenyoung | Sep 11, 2023

@sstiffel64, if I understand correctly, genetic testing showed that your lung tumor is a genetic mutation, namely multiple endocrine neoplasia type 1 (MEN1). As you likely were told MEN1 is a hereditary condition associated with tumors of the endocrine (hormone producing) glands.

You may also wish to join the discussions in the Neuroendocrine Tumors (NETs) support group, like this one:
- Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?
https://connect.mayoclinic.org/discussion/men1/
While she doesn't have MEN1, @lls8000 also has a genetic lung cancer type.

@sstiffel64, how do the results of the genetic testing affect your treatment plan? What are next steps for you?

VIEW AND REPLY