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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)

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@ssmab

Sorry to hear that you have been through a lot. Good news about your 1a result on the occular tumor tho! That was a victory!
I did not have an Oncotype dx test either. The oncologist said because my Ki 67 test number was low at 5%. From what I am reading not all hospitals do Ki 67 tests. Not sure on that tho. Maybe you can ask your Doctor what your Ki 67 test result was. I was told if it's under 14% usually no chemo and better all around.
They told me since I had a bilateral mastectomy no mammograms or Breast MRIs now. I just will have my chest wall and underarms checked every 6 months for 5 years. If they want to do a breast MRI on you once a year and you are very claustrophobic they can give you a medication to relax you. I have heard from people that does help. Maybe that's an option for you? You probably already knew that. My Mom got claustrophobic so I know how how awful that can be. I close my eyes as soon as I get on the table of the MRI machine and never open them until I am out of the machine. That helps me.
Good to hear about your Mom being a survivor at 84! Hooray!
Sending love and healing wishes to you❤️

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Replies to "Sorry to hear that you have been through a lot. Good news about your 1a result..."

Thnk you so much! I have not heard of the Ki 67 test so I will ask my oncologis when I meet with him on Wednesday. I was self sedated when I had the MRI's and it worked. Year ago I tried and failed. My Dr gave me a valium. All I did was cry like a baby and left without the MRI. She gave me something different the last 2 times!! I met with my radiologist for the first time today. I will be having the Encotype DX to see if I qualify for the study re: no radiation and only medications for hormone blocking for 5 years. I can stop the study anytime. I am going to as much as I can about this cancer. If my Encotype comes back high, I am seriously considering what you did. Sending love and healing wishes your way also💕