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Could this be chronic pancreatitis?

Digestive Health | Last Active: Dec 17, 2023 | Replies (26)

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@missingthebeach

@ladyaceintx1 hey! I am still around. I have not had any serious pain since early July. I had a very small flare during our state fair as I ate something questionable (fried) but not very much. Lasted just a few days compared to three weeks when it happened last in July. I am just managing my diet at this point and staying away from any fatty and inflammatory foods. I am taking various anti inflammatory supplements and cooking with anti inflammatory oils like cold pressed olive oil, avocado oil and adding flax seed oil sometimes for added fat to my diet. I am ranging 30-45 grams fat daily without issues. I am still on the nortriptyline for the nerve pain which I havent had since July. So far so good.

Unfortunately I have some other medical issues I am working through and have a biopsy this coming Tuesday. This entire year has just been a disaster. Something just feels off about my body I guess we will find out what that is this week 🙁 . I hope your procedure went well!? How are you doing and feeling?

I did take a lot of extra long weekends this summer and saw the beach, various concerts and did tons of outdoor activities. Trying not to focus on my ill health but it keeps creeping back into my life!

I havent had much luck adding weight I have lost another 10 or so pound this summer. I think its because of the diet and the extra exercise I am doing to keep my mind off things. I am enjoying the figure in the mirror but psychologically I am terrified of eating “regular food.” American diet is over-rated anyway I dig the oats, berries, and low fat choices I am making 🙂

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Replies to "@ladyaceintx1 hey! I am still around. I have not had any serious pain since early July...."

@missingthebeach
I'm glad you're "holding steady" with the pancreatic symptoms and you're right...even the slighest food item or stress can be offending. I had an Unexplained episode in June with very severe pain that just started for no apparent reason and sent me to the ER where no test showed what was going on. After multiple pain meds and 6 hours later, they sent me home. Still don't know what was going on. I had a second EUS FNA biopsy of the pancreas and again, fortunately they say there is no cancer, but still cannot explain why I have chronic pancreatitis. It's so frustrating! My GI says maintain the pancreatic diet, monitor for any new or continuing symptoms and get a MRI every 6 months and just wait to see if cancer happens. Unfortunately, I went 17 hours without any fluid since I was nothing by mouth at midnight and my biopsy was scheduled at 1:30pm. Since pancreatitis causes chronic dehydration anyway plus being dehydrated before the biopsy cause it took the nurse 3 tries to get the IV started...by the time I got home, my heart was racing, headache, dizziness and just felt exhausted. I asked my GI to order IV hydration and was able to get it a few days afterwards. It definitely helped but still feel like more is needed. I'm sorry to hear you have another issue that requires a biopsy. Hoping it goes smoothly for you. Let me know how you feel afterwards.
It doesn't sound like you need to be losing any more weight. That is concerning.
I feel better with my new diet too and am also fond of nuts, berries and light bites. The family have also adopted the healthier choices which makes me happy! I still have nausea intermittently and alternate between Chronic constipation and diarrhea, which I assume are ongoing issues. I know what you mean about feeling "off". It's so hard when you're the type of person who is very in touch with your body and know when something is wrong...but can't find a doctor that understands what is wrong and maybe your tests come out normal but you know something is just not right. I'm still down 20 pounds but feel better and have no plans to add it. At this point, I'm just going to try and get on with my life as much as possible which includes trying not to obsess over it.
Let me know how you are after your biopsy. I'll keep you in my thoughts.