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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Hello @notborntoburn, welcome to Connect. I'm glad you found this group where you can share your symptoms, ask questions and learn what others are doing for treatments. 12 years is indeed a long journey trying to find something that helps with your neuropathy. I've had neuropathy 20+ years but I don't have the pain. I only have numbness with mine. I waited until a few years ago to get diagnosed and I was diagnosed with idiopathic small fiber peripheral neuropathy. I posted my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
You may also be interested in the following discussions on Connect:
> Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Can I ask what type of neuropathy you have and other treatments you've tried?
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I have PN no specific cause,it was first treated as restless legs about 12yrs ago. I began the route of Lyrica,Cymblata,Neurotin,all the antidepressants,neurological medications,alcohol injections between the toes(that was really fun!)acupuncture,surgery for nerve compression. There is nothing, no vitamins,herbs,lotions,potions, walking that stops it but I just will not trying!