← Return to Anyone here dealing with peripheral neuropathy?

Discussion

Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)
Comment receiving replies
@notborntoburn

Hello I am new to this group but feel so grateful to find you burning friends,my PN has no relief I have been searching for over 12 yrs,shoes,medicine,I am starting the Ketamine infusions this week,once a week for a month.

Jump to this post

Replies to "Hello I am new to this group but feel so grateful to find you burning friends,my..."
John, Volunteer Mentor | @johnbishop | Apr 19, 2019

Hello @notborntoburn, welcome to Connect. I'm glad you found this group where you can share your symptoms, ask questions and learn what others are doing for treatments. 12 years is indeed a long journey trying to find something that helps with your neuropathy. I've had neuropathy 20+ years but I don't have the pain. I only have numbness with mine. I waited until a few years ago to get diagnosed and I was diagnosed with idiopathic small fiber peripheral neuropathy. I posted my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

You may also be interested in the following discussions on Connect:

> Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Can I ask what type of neuropathy you have and other treatments you've tried?

VIEW AND REPLY
deedee46 | @deedee46 | Apr 20, 2019

I'm new here, too. I've been considering Ketamine. Keep us informed how it's goes, ok?

VIEW AND REPLY